Contextualising an online mindfulness-based intervention for young people with cancer: A qualitative study
Publication Name
Collegian
Abstract
Background: Despite improved prognosis, living with cancer can still negatively impact young people's psychosocial well-being. Mindfulness-based interventions (MBI) have been shown to help manage cancer-related stress but tailored interventions for young people are warranted. In addition, attendance at intensive face-to-face MBI is often a barrier to access and adherence. Aim: This study aims to contextualise an online MBI, for young people with cancer (YPWC). Methods: This study modified an online MBI using a qualitative research approach through several phases, including a discussion with experts, a workshop with YPWC (n = 6), followed by focus groups with health professionals (n = 5) and YPWC (n = 7). Findings: The qualitative thematic analysis of data from the workshop discussion and focus groups identified two key themes, which were (i) developing mindfulness skill and adopting into daily living and appropriateness; and (ii) accessibility of design and delivery of an MBI eBook. The participants in the workshop and focus group provided various recommendations and as a result of these data, the modules were modified and further tailored both at the design level and the module contents. Discussion: This study contextualised a self-directed, online MBI through the participation from YPWC and healthcare providers. This participatory approach enabled the development of a young people friendly intervention that incorporated cancer-focused case studies with mindful reflections, all of which were well-received by YPWC. Conclusion: The involvement of end-users in the development phase significantly improved the acceptability of this intervention design. The tailored MBI potentially aids the psychosocial well-being of YPWC.
Open Access Status
This publication may be available as open access
Volume
31
Issue
1
First Page
56
Last Page
62
Funding Number
20341.87792
Funding Sponsor
University of Western Sydney