Are family factors universally related to metabolic outcomes in adolescents with Type 1 diabetes?
Authors
Timothy C. SkinnerFollow
Hvidoere Study Group on Childhood Diabetes, Novo Nordisk
Soren E. Skovlund, Novo Nordisk
Fergus Cameron, Department of Endocrinology & Diabetes, Royal Chil
Carine de Beaufort, Centre Hospitalier de Luxembourg
J Aman, Orebro University Hospital
H Aanstoot, Diabetes Center Rotterdam
P G. Swifts, Leicester Royal Infirmary Children's Hospital, Lei
P Martul, Endocrinology and Diabetes Research Group, Hospita
F Chiarelli, Department of Pediatrics, University of Chieti, It
D Danema, The Hospital for Sick Children, University of Toro
T Danne, Chefarzt Pädiatrie III, Kinderkrankenhaus auf der
H Dorchy, Diabetology Clinic Children's University Hospital
E A. Kaprio, Peijas Hospital, Vantaa, Finland
F Kaufman, Children's Hospital of Los Angeles
M Kocova, Pediatric Clinic, Medical Faculty Department of En
H B. Mortensen, Paediatric Dept L, Glostrup University Hospital, D
P R. Njølstad, Department of Pediatrics, Haukeland University Hos
K J. Robertson
T Urakami, Nihon Uni. School Medicine, Japan
R W. Ackermann, Novo Nordisk, Bagsvaerd, Denmark
M Vanelli, Uni. of Parma, Italy
E J. Schoenle, University Children's Hospital, Zurich Switerland
P Phillip, National Center of Childhood Diabetes, Israel
Abstract
Aims: To assess the importance of family factors in determining metabolic outcomes in adolescents with type1 diabetes across varying international contexts. Methods: Adolescents with type 1 diabetes aged 11-18 years, from 21 paediatric diabetes care centres, across 19 countries, and their parents were invited to participate. Questionnaires were administered recording demographic data, details of insulin regimens, severe hypoglycaemic events and number of episodes of diabetic ketoacidosis. Adolescents completed the parental involvement scale from the Diabetes Quality of Life (DQOLY-SF) and the Diabetes Family Responsibility Questionnaire (DFRQ). Parents completed the DFRQ and a Parental Burden of Diabetes score. A capillary blood sample was drawn from each patient and analyzed centrally for HbA1c. Results: 2062 adolescents completed a questionnaire, with 2036 providing a blood sample. 1994 parents also completed a questionnaire. Family demographic factors that were associated with metabolic outcomes included, parents living together (t=4.1;p
Publication Details
Cameron, F. J., Skinner, T. C., de Beaufort, C. E., Hoey, H., Swifts, P. G., Aanstoot, H., Aman, J., Martul, P., Chiarelli, F., Danema, D., Danne, T., Dorchy, H., Kaprio, E. A., Kaufman, F., Kocova, M., Mortensen, H. B., Njølstad, P. R., Phillip, P., Robertson, K. J., Schoenle, E. J., Urakami, T., Vanelli, M., Ackermann, R. W. & Skovlund, S. E. (2008). Are family factors universally related to metabolic outcomes in adolescents with Type 1 diabetes?. Diabetic medicine, 25 (4), 463-468.