Title

'I don't feel like I'm in this on my own': Peer support for mothers of children with intellectual disability and challenging behaviour

RIS ID

135180

Publication Details

A. Dew, S. Collings, L. Dowse, A. Meltzer & L. Smith, "'I don’t feel like I’m in this on my own’: Peer support for mothers of children with intellectual disability and challenging behaviour", Journal of Intellectual Disabilities 23 3 (2019) 344-358.

Abstract

This article reports on the peer support experiences of mothers with a son or daughter with intellectual disability and challenging behaviour. Engagement in parent peer support programs can improve family quality of life and may have multifaceted benefits at the interpersonal, intra-individual self-change and sociopolitical levels. Thirteen mothers were interviewed about their experiences of participating in a parent peer support program. Thematic analysis focused on the process elements of the program that contributed to its effectiveness in providing support to parents. There were three process-related themes: the role of a paid coordinator, diversity of engagement strategies and matching of peer support partners. Mothers appreciated the opportunities provided to engage in a range of strategies tailored to individual preferences, time and capacity constraints, supported by the paid coordinator. One-to-one peer support proved difficult to sustain given the challenges mothers faced in their day-to-day lives.

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Link to publisher version (DOI)

http://dx.doi.org/10.1177/1744629519843012