Younger onset dementia: a review of the literature to inform service development



Publication Details

J. Sansoni, C. Duncan, P. Grootemaat, J. Capell, P. Samsa & A. Westera, "Younger onset dementia: a review of the literature to inform service development", American Journal of Alzheimer's Disease and Other Dementias 31 8 (2016) 693-705.


This literature review focused on the experience, care, and service requirements of people with younger onset dementia. Systematic searches of 10 relevant bibliographic databases and a rigorous examination of the literature from nonacademic sources were undertaken. Searches identified 304 articles assessed for relevance and level of evidence, of which 74% were academic literature. The review identified the need for (1) more timely and accurate diagnosis and increased support immediately following diagnosis; (2) more individually tailored services addressing life cycle issues; (3) examination of the service needs of those living alone; (4) more systematic evaluation of services and programs; (5) further examination of service utilization, costs of illness, and cost effectiveness; and (6) current Australian clinical surveys to estimate prevalence, incidence, and survival rates. Although previous research has identified important service issues, there is a need for further studies with stronger research designs and consideration of the control of potentially confounding factors.

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