"Between the devil and the deep blue sea": the beliefs of caregivers of people with dementia regarding the use of in-home respite services

RIS ID

37445

Publication Details

Phillipson, L. & Jones, S. C. (2011). "Between the devil and the deep blue sea": the beliefs of caregivers of people with dementia regarding the use of in-home respite services. Home Healthcare Services Quarterly, 30 (2), 43-62.

Abstract

This article details results from qualitative research with caregivers in regard to the beliefs they associate with the use of in-home respite services. Outcomes are perceived by caregivers in relation to care recipient personal safety and the avoidance of negative consequences through the provision of supervision in the caregiver's absence. Use of in-home services challenges normative beliefs for some caregivers, particularly for spousal caregivers who feel it is their role to provide assistance that is needed in the home. Likewise, perceived inflexibility and the inability of in-home services to provide responsive and personalized care make the use of in-home services difficult and may inform control beliefs. Implications are discussed in relation to community care pathways and the promotion and development of in-home respite services to better target caregiver beliefs and respond to caregiver perceived needs.

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Link to publisher version (DOI)

http://dx.doi.org/10.1080/01621424.2011.569522